Fractured: Just Like Riding A Unicycle (Again)

I’m a delicate badass. I don’t like pain, but when you’ve broken a few dozen bones (arms, hands, fingers, legs, toes, feet, multiple vertebrae, tailbone, collarbone, breast bone, skull, and some others I know I’m leaving out) multiple times you become aware of two solid truths. You, or at least your body is completely breakable – brittle (I have Osteo Genesis Imperfecta, or OI, brittle bone disease) and it also builds up your tolerance to pain and gore and all that other good stuff, making you a badass.

It’s been awhile since I’ve had a true fracture, let alone a bad one. But it serves me right to have one now. I’m currently working on an essay about the pain scale, chronic pain and the perspective/relationship of pain and the person feeling it and of course my history of fractures pops up. Even specific references to my left arm, wrist and hand. So it seems fitting I would break two bones in my left hand while on a tight deadline to finish said essay. Because this is the universe I live in.

Let’s start with the obvious. This SUCKS. Like so hard… I act like it’s no big and in the grand scheme of things – it’s not, but it hurts. Like I have a crazy pain tolerance so I’m like “Whatever,” and I am not taking the hardcore pain pills the orthopedic surgeon prescribed (I have them just in case though, in which case I’ll cut a pill in half) and I can handle it – function, but seriously it HURTS. Like the pain is always there but every now and then my entire hand will start to throb and then the pain washes over me in waves, making me seriously nauseated. Then there is the whole functioning thing.

Continue reading

Posted in Family, Health, home, Medical, Personal, Relationships, Thoughts | Tagged , , , , , , , , , , , , , , | Leave a comment

My Heart is (Breaking) With Orlando

I have wanted to say something about Orlando since hearing about it. And I can’t. Because I don’t understand. I don’t understand hating someone so fiercely you want to end their life. Even someone who has wronged you in the vilest ways. But strangers? People just for being in the wrong place at the wrong time? People you are judging as sinners, when most religions promote love and acceptance before people twist it to fit their ignorant agendas. I don’t understand the loss. Why it has to keep happening. Why people seem to value greed and paranoia over innocent lives. There is no reason why civilians need access to weapons of mass destruction. I’m not talking about handguns or rifles – I believe in a person’s right to bear arms. But why would a civilian ever need to own a machine gun or such similar weapons? I don’t care if they “collect” such weapons. Would we allow nuclear devices into civilians’ collections because… This is not meant to be a rant. I’m still working things out in my head. Because I don’t understand. It’s a chant that keeps going round and round in my head. The hate. The senseless death. All the loss. Any of it. I don’t. My heart is (breaking) with Orlando and the rest of my community as we grieve and seek to understand what cannot be understood.

Posted in breaking news, community, Crime, Current Events, Events, gay, LGBT, News, Opinion, Thoughts | Tagged , , , , , , , , , | Leave a comment

A “Surprise” Visit: Showing My Youngest Brother Colorado

I am very proud of my home, both the home I’ve made with my husband and all the wonderful things in Colorado that Nebraska just doesn’t have. (No I am not talking about legalized marijuana. 😛 )

And last week I got my chance. My youngest brother, *J came out for a visit with his parents (my dad and stepmom), and we all had a great time!

I was excited to have them stay with us – to show J our house and take him to some of our favorite haunts. The day they got in everyone just took it easy and hung out, talking at our place. Which is ideal for me with my hearing. Then we went to our favorite local barbecue place. It’s a hole in the wall, but aren’t those the best?

J is really into hot wings and they have AWESOME wings so we thought that if there was one place we had to take them to, it would be that place. The next day was J’s swim meet, which was the “official” reason for the trip in the first place. With him in Omaha and me here, I have never been able to watch him swim, and I loved seeing it live instead of a video on my stepmom’s phone or on Facebook. It was fun (and I brought some magazines to read between his events so I did okay). Continue reading

Posted in Family, food, home, nature, Personal, travel | Tagged , , , , , , , , , , , | Leave a comment

Four Years: Another Birthday Missed

Four years. That’s what it will be in ten days. Four years since I’ve seen, spoken to or really had any contact beyond the occasional email or text message where she wants something… where I can’t even be sure that it’s her on the other end of the line. Four long, hard, heavy years.

Yesterday she turned eighteen. Don’t get excited – in Nebraska you’re not legally an adult until you’re nineteen. But even that doesn’t really matter. She could be turning twenty-two and I don’t see things changing.

Last year I wrote all about it. How I don’t tell my sister the truth in some foolish attempt to protect her. And how I’ve gone so long, I can’t exactly come clean even if I felt like it now. The truth about how abusive our mother was to me – so much so that police were called multiple times. Teachers would report concerns, or I wasn’t good enough at hiding the bruises. How physical abuse ranging from punching to more serious offenses like strangulations or knife attacks was actually the easy part. It’s the part that doesn’t contribute to who I am as a person today. It’s all the mental and emotional stuff – the games, manipulation… those are the parts that suck.

Anyway, my sister K, sent me an invitation to her graduation open house. To be clear – I’m not going. It didn’t come with a personalized note. I didn’t get an email. I don’t even know where she is attending college, even though I spent countless hours helping her with her essays for free (had she been a client, it would have seriously cost her more than two grand, not because I’m high-end but because of how many essays, scholarships, rush deadlines etc. I worked on). I don’t know where she is going to school or what her plans are.

Continue reading

Posted in Family, Life, People, Personal, Relationships | Tagged , , , , , , , , , | Leave a comment

I Exorcised The Peruvian Demon Inside Of Me

For the past 9+ days I’ve had a demon inside of me. That’s how it has felt for the last week. Hi, my name is Michael, and I am not any good at being sick. Not even a little.

See I usually avoid getting sick. Because I’m a considered “a very vulnerable adult” – that’s what doctors say anyway. Of course my response would be, “Say that to my face and I’ll show you who’s vulnerable…” But I never actually say this because when they say it, I’m sick. And when I’m sick – I’m out. Done. That’s all folks.

When my husband gets sick I take care of him. But I treat any sniffles or “It’s just allergies” as Ebola. No, I’m serious. EBOLA. Picture a hazmat suit, and I have created my own lighter version. I don’t let my hands touch anything in case there are germs there. Sanitation wipes are abundant. I won’t get in the car with him, but to my credit I still sleep in the same bed as him. (But I won’t touch him or let him touch me.) I won’t let him help out around the house, not out of being nice but out of “Don’t contaminate anything! STOP! FREEZE! Go to bed!” (He is an awful patient, he is actually worse than me, and I’m pretty bad!)

My immune system has been extra “special” since my year of chemo. I used to never get sick. It was what I considered to be balance in the universe since I have had dozens of brain surgeries, broken bones and a few heart surgeries. It was like, “You have all of this chronic crap that sends you to the hospital so much it’s like your vacation home. So as a fair trade, you won’t get sick. No colds or strep or a flu for you. I’ve got you covered.”

Continue reading

Posted in Family, Health, home, Life, Medical, Personal, Relationships, Thoughts | Tagged , , , , , , , , , , | Leave a comment